Preimplantation Genetic Diagnosis-Baby's Beginning

My experiences of concieving our first child using preimplantation genetic diagnosis

Friday, April 11, 2008

Got some back

We FINALLY got our first reimbursement!! Hooray! We got reimbursed for the transfer portion, since we didn't do the embryo transfer. I see that our credit card has been credited $2,596. So, out of a total of $26,322, we now *only* have $23,726 left. Well, I'm just happy to get SOMETHING back. This was credited directly from RGI, but the rest has to be submitted to our insurance first, which hopefully they've done by now...have to check again on Monday. I hope the rest comes soon!


Anonymous May said...

As a potential PGD'er I've been very interested to read your blog.

I have been checking back, but had bookmarked the February archive in error, and have only just read March and April's posts.

I'm so sorry to learn it didn't work out with the PGD this time. I hope you are doing OK- I think I can imagine, if only a little bit, how hard it was to hear that news.

Kind regards from London, UK

Sunday, April 20, 2008 7:58:00 a.m.  
Blogger PGDMom said...

May - Thank you. I feel pretty okay now, just trying to enjoy my break as much as possible and hoping to get pregnant again very soon! :) It's a lot to go through, and kind of like a miscarriage, I don't think I'll ever completely "be over" it. I hope you get pregnant with a healthy baby soon, either natural or through the PGD! :)

Monday, April 21, 2008 10:53:00 a.m.  
Blogger Tracy said...

I have been researching PGD and came across your blog - thank you for taking time to share your personal experience. Very sorry to read that it did not work for you this time - I know it is heart breaking and frustrating.

The reason for my research is that at 42 years old I had my first child naturally (it was a surprise to say the least) and would like to have another child. After a miscarriage a few months ago this is an option for advanced maternal age like myself.

I struggled with infertility and immune issues for years and at 35 after several miscarriages and failed IUI's and medications, injections and (eventual divorce) gave up. So, I understand the heartbreak and frustration.

Best wishes for you both and thank you again for sharing your experience.


Monday, June 02, 2008 9:40:00 a.m.  
Anonymous Anonymous said...

I just wanted to thank you for being open about all this, and for giving out all this valuable information. I really appreciate it and wish you all the best for your next try. I dont know why but I have a feeling that you´re going to get pregnant naturally next time and it will be pretty soon.

I´ve been diagnosed with x-linked ichtyosis a disease that I don´t have but that I could pass it on to a boy and it could be problematic, it´s a problem of the skin and could be asociated with mental retardation. They tested both my parents and a brother, they don´t have it but I do. The best bet is to have a girl. They found out about this in my first and only pregnancy 4 months ago. The blood tests for genetic problems detected that my baby had this alteration, it happened at the end of my first trimestre. To confirm it they did the amnio. It was confirmed and it was a boy. Since this was totally unexpected they didn´t know if I carry it or my family so they couldn´t tell how this disease manifests in the family. My baby could have it mild or really bad so we decided to terminate the pregnancy, particularly since it is asociated with mental retardation.

I couldn´t tell you how difficult emotionally and physically this procedure was for me. It´s very different to terminate your pregnancy at your second or third month than at almost the fifth. This is why we thought about going IVF/PGD. IF we try naturally they could do the CVS early so I could terminate it on the second month at the most, that is something completely different that later but even like that I don´t want to go through that again, it would have a toll on me I know.

That is why we thought about the PGD, but after talking to people and listening to your story IVF it´s not as easy or effective as I thought, things happen. We might as well try naturally.

Besides that I´m not sure if the PGD is infallible detecting this or other problems.

On the other side, it´s incredible how many women have had their babies with IVF, it´s amazing the number of twins you find everywhere and they are all IVF! Eventhough I´ve heard that the percentage of living birhts is only 60%!

From your experience, what would you do? Would you go again through all the ordeal of IVF or would you try again and hope for the best?

Thanks again, as I told you before I wish you all the luck in the world. You will see your baby by next year, for sure!

Tuesday, June 10, 2008 6:10:00 p.m.  
Blogger PGDMom said...

Tracy -
Best of luck on your second child! You are indeed lucky to have your first naturally at 42! Wow! I would recommend doing the PGD for you rather than trying naturally again, because of the age factor. Although it's wonderful you got lucky once, from your history it is probably unlikely that you would get lucky naturally again, and you don't have any time to waste, so the PGD would probably be a much smarter route. Also, if the PGD doesn't work out for you, you could also consider using donor eggs. Donor eggs seem to help the most for women 40+.
Again, congratulations on your first! :)

Wednesday, June 11, 2008 8:03:00 p.m.  
Blogger PGDMom said...

Anonymous -
I'm so sorry about your termination :( . I can almost imagine what that would have been like so far along... It sounds like you're in a very similar position as me. After having gone through both a miscarriage and a PGD, I would recommend that you try naturally again. Give it one more try, and if you have to terminate again, then go for the PGD.

I've actually been reconsidering my plan of alternating miscarriage/termination - PGD, to a 2:1 ratio, so that I do two miscarriages before trying the PGD again. Like you, I thought the PGD would be easier and safer, but I've found that just isn't the case. About the PGD detecting the disorder - I'm not worried about that. In my case, we got a clear report indicating which ones carried the disorder, with no ambiguity. The worry is more with the drugs and the shots and the egg retrieval needles and probes wrecking havoc on our bodies. And of course the possibility that you'll get unlucky and not have any to transfer after all that!

So I think you should try again naturally and do the CVS, then if you get unlucky on this second pregnancy, then do the PGD. Hopefully this next pregnancy will be the one for both of us!

Wednesday, June 11, 2008 8:13:00 p.m.  
Anonymous Dan said...

Just found your blog. My wife has Neurofibromatosis Type 1, which is a fairly unpleasant genetic disease. Our first child inherited NF and we had pretty much decided that we wouldn't take that chance again. But when we heard about PGD, we decided to give it a shot.

The first time, the results were pretty similar to yours (only they didn't even give me porn... I had to fantasize about the cleaning lady in the hallway running the vacuum cleaner). The result was, if I remember correctly, four embryos, one of which did not have NF, and that one wasn't viable.

I should probably mention that my wife underwent this procedure in Japan -- I had lived there the previous 12 years before landing a job in the U.S. -- and three days before I flew to the U.S. (my wife and daughter stayed behind while awaiting my wife's green card) I made my "contribution" at the fertility clinic. So all through this first attempt, we were separated for about four months. After the PGD failed, she came with my daughter to the U.S. About a month later, we finally had "the conversation"... she wanted to try it again. I knew that if I stood in the way, she would always regret missing the opportunity. We agreed to give it one more shot.

So, she flew back to Japan with my daughter for another three months.

This time, she produced 11 eggs, I think, and three of the embryos were viable and NF-free. The first one implanted did the trick. Joe was born Feb. 29, 2008.

Yes, we drained almost all of our savings. But, hell, it's only money. My daughter, who has NF, is showing some troubling signs... she has a (benign) tumor the size of a golf ball and may eventually need surgery to have it removed... IF it can be removed.

I know the price tag for PDG can be daunting. But Joe's PGD was a lot less expensive than the long-term health care costs my daughter is likely to incur.

Both my wife and I are 38. Sounds like you and your husband are quite a bit younger than us, and you have a lot of time -- at least 10 years.

Tuesday, July 08, 2008 11:22:00 p.m.  
Blogger PGDMom said...

Dan -

I'm so glad your 2nd PGD was successful! :) Congratulations on your son! :) It's so wonderful to hear success stories.

LOL about the porn ;)

I hope your daughter's tumor can be safely removed. How scary :( . Yes, it's definitely worth the trouble to prevent these disorders in the first place.

Wednesday, July 09, 2008 9:07:00 p.m.  

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