Preimplantation Genetic Diagnosis-Baby's Beginning

My experiences of concieving our first child using preimplantation genetic diagnosis

Thursday, October 30, 2008

Plan #4

Well, here we are again. I became pregnant naturally again, and we had bad luck, again. Another boy with IP. Sometimes it just doesn't seem real. I don't know how many times it's going to take. I know I really don't want to be walking through hospital doors again, with another D&E in my future.

Well, there's not much we can do though. We're going to try again naturally. As hard as it is, I really feel it's not as hard as going through the PGD process again. But just one more time. If, I don't even want to say it, this should happen yet again, we will try the PGD again. Oh, and if anyone's wondering, we did get fully reimbursed finally for our previous PGD.


Anonymous Charlotte said...

I've just read through all of your blog posts - I work in a genetics laboratory in the UK (NHS), and I just wanted you to know that I hope - from the bottom of my heart - that your next pregnancy will be healthy and run to term. Thank you so much for posting your experiences, feelings and story. Wishing you all the very best, Charlotte

Tuesday, November 25, 2008 1:38:00 p.m.  
Blogger d.a.croydon said...

Poor girl. I hope the 4th time is successful. If you had to chose from the start once again, would you still go for natural conceiving and possible abortion, having now experienced both? I don't know which one to do myself. My husband has myotonic dystrophy.

Monday, December 01, 2008 1:13:00 p.m.  
Anonymous Anonymous said...

PGDmom I've just come across your blog & am so sorry to hear of all you have been though. I just wanted to send you my best wishes & strength not to give up.

I also have IP & have suffered 3 miscarriages over the past 3 years. We also started the PGD process but after 2 long years of waiting for the workup to be completed I fell pregnant again naturally. I'm delighted to report that I'm now 33 weeks pregnant.

After having an amnio I found out that our daughter will have IP. At 1st we were devastated, our main concern (like yours) were the neurological issues that can come with IP. But we've had extra monitoring & our little angel is looking just perfect, ultrasounds these days are very accurate & can pick up most serious problems so we are comforted by that fact.

I was also of the opinion that we would terminate if we were ever faced with the scenario of an affected female, however this was easier said than done. Please always remember that the severe neurological issues are in the minority. I, like you & countless of others with IP are completely normal.

Apologies for the long post, I just wanted to give you hope that you will eventually get there. In the meantime good luck & take care of yourself. If you ever want someone to talk to please let me know.


Thursday, January 01, 2009 8:08:00 p.m.  
Anonymous Anonymous said...

Dear Miss!
I am journalist from Russian edition weekly journal "Newsweek".
Our journal plan to publish story devoted to PGD.
Can I anonymous cite some phrases from you blog?

Would be grateful for answer.
Thank you!

With kind regards,

Nikita Maximov

Wednesday, January 28, 2009 3:57:00 a.m.  
Anonymous CA said...

Just a word of support to say thank you for sharing your brave journey - there is so little information about PGD from a real person's perspective on the net and please know you have helped so many people by sharing this. i check back on your blog from time to time and was so sorry to read of your recent experience. i really hope that the future brings you what you are looking for and wish you and your husband all the very best for the future.

Thursday, February 12, 2009 12:59:00 a.m.  
Anonymous Anonymous said...

Dear PGD Mom
Ah, I so understand what you have been through! We too have been through 2 lots of PGD.
We live in South Africa where PGD is not done & had to travel to the UK to have the procedure done.
The 1st try at PGD took place September 2008. We fell preggie, saw our little angels heartbeat at 7 weeks & then at 9 weeks there was no heartbeat!!
Our 2nd try was in February 2009. We got a Big Fat Positive on the Monday & by the Friday our hCG levels went down & had another miscarriage.
We are totally shattered by all this & feel angry!!! I mean, we have gone to such an extent to try to do the right thing & it has kicked us in the teeth!!!
We are now in the process of looking at going the CVS route – I have Googled the procedure & know how it all works but wanted to talk to people who have been through it. I know I have to be strong, but know it is going to be so very tough if we have bad luck.
Your last post said you were going to try naturally again – I send you all the best luck in the world & believe that you will be blessed with a happy healthy child.
My email address is:
Lots of love

Monday, March 02, 2009 12:22:00 a.m.  
Anonymous Anonymous said...

hi - i just found your blog! i Just found out i will be going through IVF with PGD. i have searched and searched for others and can't find anyone. i found your blog and am so excited to read about your expereinces. i am eager to get the update. and also to see if you found any other blogs of folks that have similar expereinces. myemail address is babywalkbaby at gmail dot com. i would love to hear from you!

my email adress is

Tuesday, March 24, 2009 10:21:00 a.m.  
Blogger PGDMom said...

D.A. Croydon - I think the conventional PGD and having a termination is about equal in terms of both physical and emotional stress. In terms of what I would do next time, I recently found out about an exciting new option that I now plan to pursue instead of either - I'm going to put up a new post about it after I answer the comments. It's called "Mini-IVF" (with PGD). I haven't been through it myself yet, but from how it sounds, I'd highly recommend a mini-IVF with PGD over either the conventional IVF with PGD or the natural conception with termination. Check out the new post for more info.

Friday, June 12, 2009 1:38:00 p.m.  
Blogger PGDMom said...

Charlotte - Thank you.

Friday, June 12, 2009 1:39:00 p.m.  
Blogger PGDMom said...

Anonymous - I'm so sorry for your losses :( I know how hard it is. I'm so sorry your daughter will have IP too. I really hope she gets a very mild case like us. We got pregnant with a girl this time, but they informed us that most abnormal brain problems for IP will not show up on even high resolution ultrasounds. There are no markers like for trisomy problems. At least, that's what our doctors and genetic counselors here have told us. We are going through with the termination, since the neurological risk is quoted at about 30% these days, although I really don't know how accurate the statistics are since the sample sizes are usually so small for IP. We just feel we can't take the risk. But you are very right, it's extremely hard.

If you're still reading this, please check back and tell me how your daughter's doing! I really hope she got a mild case! Best wishes!

Friday, June 12, 2009 1:50:00 p.m.  
Blogger PGDMom said...

Znanie - Yes, feel free to use the information and stories in my blog. Just please keep everything anonymous, including the comments from posters who may have given their names or other IDs.

Friday, June 12, 2009 2:09:00 p.m.  
Blogger PGDMom said...

Monique- I'm so sorry the PGDs haven't had happy endings for you :( I know how frustrating that is. That's a long way to have to travel for it as well! Ouch. Do you know why you miscarried? I'm guessing since you did the PGD that it wasn't related to whatever disorder you were trying to avoid? If you don't know, I would suggest having multiple miscarriage testing done. Some women have problems such as blood clotting that causes miscarriages even in normal fetuses, so if you don't know the cause, it's very important that you try to find out so it can be avoided. Best wishes!

Friday, June 12, 2009 2:14:00 p.m.  
Blogger PGDMom said...

Anonymous - I hope your PGD went well! I remember looking for others with PGD blogs, but I couldn't find any with any good info. I found one very emotional one that didn't talk about details at all, but I don't remember where it was now... That's why I started this one! :)

Friday, June 12, 2009 2:15:00 p.m.  

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